March 2023 Newsletter

Happy March! 🍀
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Hey <<First Name>> - in this email we will share:

  • Developmental Disabilities Awareness Month
  • Endometriosis Awareness Month
  • Winter Wellness Check-in
  • March Must-Reads
  • Upcoming Events

You can always connect with DSHN in other ways, too:

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Developmental Disabilities Awareness Month

Please reach out to dshn@jmu.edu to share resources that would be helpful for folks in our network, or for more resources on any specific topic. 


"We must promote - to the best of our ability and by all possible and appropriate means - the mental and physical health of all our citizens."
                                      - President Kennedy, February 5, 1963


Each March, the National Association of Councils on Developmental Disabilities (NACDD), The Association for University Centers of Disabilities, and the National Disability Rights Network join together to celebrate Developmental Disabilities Awareness Month. Before the 1960s, most people with intellectual and developmental disabilities (IDD) were sent to live in under-funded state institutions or kept away from ‘normal’ society. 


Motivated by their family’s experience with their sister Rosemary, Eunice Kennedy Shriver and John F. Kennedy dedicated their time in spotlight to uplifting the needs of people with IDD. In 1962, President John F. Kennedy established the National Institute of Child Health and Human Development. The institute, which still exists and functions today, was founded to conduct and support research on all aspects of intellectual disabilities as well as general maternal and child health. Additionally, President Kennedy established the President's Committee on People with Intellectual Disabilities as well as signing into law many important disability-adjacent laws. 
 

Despite JFK’s short presidency, the John F. Kennedy Foundation reports that in the 20 years after his presidency Congress passed over 116 acts or amendments that provided support for people with intellectual disabilities and their families. In 1968, Eunice Kennedy Shriver founded Special Olympics (one of our wonderful partners!). Then 1989, her son Andrew Shriver founded Best Buddies (check out our local JMU chapter!).
 

This year, the National Association of Councils on Developmental Disabilities (NACDD) is using artwork created by artists with disabilities “to raise awareness about the inclusion of people with developmental disabilities in all facets of  community life, as well as the awareness of the barriers that people with disabilities still face in connecting to the communities in which they live.” To join NACDD in their mission, visit their website or post your stories and experiences using #DDawareness2023, #DDAM2023, #BeyondtheConvo or #BeyondtheConversation.  
 

While support and research surrounding people with IDD have improved dramatically since the 1960s, sexual health education still remains inaccessible for many students with IDD. For more information on including Family Life Education (FLE) in your child's Individualized Education Plan (IEP), check out these resources created by our staff:


For more information about the Kennedy family and their contribution to disability studies, visit the John F. Kennedy Foundation. For more resources and to stay up-to-date on recent disability research and advocacy movements, visit the websites below: 

American Association of People with Disabilities | AAPD
American Association on Intellectual and Developmental Disabilities | AAIDD
Disability Rights Education and Defense Fund | DREDF
Disabled People’s International | DPO
National Alliance on Mental Health | NAMI



* It is important to note that in 1960s, intellectual and developmental disabilities were referred to as 'mental retardation.' Here, the term has been replaced with 'intellectual disabilities.'
Quick Facts: Endometriosis Edition

March is also Endometriosis Awareness Month. These quick facts will help you to increase your endometriosis knowledge just in time for Endometriosis Awareness Month. 
  1. Endometriosis is a condition where endometrial tissue, tissue similar to the tissue that makes up the lining of the uterus, grows outside of the uterus.
  2. Endometriosis is a chronic disease that can cause severe, life-impacting pain.
  3. According to the World Health Organization (WHO), endometriosis affects 10% of the world’s population who have or have had* a uterus (around 190 million). 
  4. Endometriosis can affect any person who has or has ever had a uterus at any age.
  5. There is currently no definite cause of endometriosis. 
 

For more information about endometriosis, possible risk factors, and treatments, check out these resources:

Endometriosis - World Health Organization | WHO
Endometriosis | John Hopkins Medicine 
Endometriosis FAQs | American College of Obstetricians and Gynecologists (ACOG)
Endometriosis Resources | Endometriosis Association 

 
* 'have or have had' used because even after having a hysterectomy (surgical removal of the uterus) endometriosis can still occur if not all the tissue was removed during the surgery -- typically presents 2-5 years after procedure
Resources throughout the newsletter are labeled as follows: 
[t]=text [v]=video [a]=audio [l]=list [w]=website

[w] Guide for explaining your pain to your gynecologist 
[w] Endometriosis Resources
[t] Endometriosis Factsheet
[t] Sample Letter for Developmental Disability Awareness - Created by The Arc of New Jersey, this sample letter provides a valuable outline for parents/guardians of children with disabilities to reach out to local officials about the needs of the disability community
[v] Endometriosis Explained | AMAZE
[t] The Developmental Disabilities Act in plain language
[a] Too Much and Never Enough | The Accessible Stall
Tip: Use YouTube's media player controls to make videos more accessible. Find out how at the links below: 
Winter Wellness Check-in!

Winter is almost over, but the last couple weeks of cold can be difficult. Here are some tips for staying happy and feeling good when its cold outside!
Don't forget to go outside!
It is easy to stay cooped up during the cold winter months, but getting outside is so important for your physical and mental health. Pick a sunny day, bundle up, and spend a few minutes enjoying the sunshine and crisp winter air. 
Moisturize, please!
This is your daily reminder to take care of your skin! The cool, dry winter air can easily remove all the moisture from your skin. That, combined with heat and scratchy fabrics, can be a recipe for skin disaster! Make sure you are applying lotion to your body each time you shower to keep your skin fresh and moisturized.
Establish a sleep schedule
Sleep is so important! Our bodies regulate sleep based on natural light, so when the days are shorter we tend to feel more tired and less rested. Selecting times for when you want to get up and go to sleep and maintaining those times can help combat excessive drowsiness in the cold and dark winter months!
Make some veggie soup!
According to dietitians, winter is the best time for root vegetables - potatoes, sweet potatoes, turnips, parsnips, carrots, and more! Roast your veggies, puree them, and make a warm and yummy soup with lots of vitamins and nutrients! 
DSHN's March Must-Reads!
Click on the underlined book title to learn more!
True Biz 
by Sara Novic

Genre: YA Fiction

"This is a story of sign language and lip-reading, disability and civil rights, isolation and injustice, first love and loss, and, above all, great persistence, daring, and joy. Absorbing and assured, idiosyncratic and relatable, this is an unforgettable journey into the Deaf community and a universal celebration of human connection."




 
When We Were Vikings
by Andrew David MacDonald

Genre: YA Fiction

"When We Were Vikings is an uplifting debut about an unlikely heroine whose journey will leave you wanting to embark on a quest of your own, because after all...

We are all legends of our own making."
Have Dog, Will Travel
by Stephen Kuusisto

Genre: Non-fiction 

"In a lyrical love letter to guide dogs everywhere, a blind poet shares his delightful story of how a guide dog changed his life and helped him discover a newfound appreciation for travel and independence."
 
When Charley Met Emma
by Amy Wells

Genre: Children's Book

"This delightful book will help kids think about disability, kindness, and how to behave when they meet someone who is different from them."
Upcoming Events

Every month we will highlight a few events relevant to disability-inclusive sexual health education. Follow our Google Calendar to view these and many more events, updated often!

Are you aware of or hosting an event you think would be relevant? Send/forward event info to dshn@jmu.edu!

Sex Positive Families: Growing Into You: Live Puberty Workshops
  • Join us for a fun, interactive virtual workshop that will help your family talk openly about puberty and learn about the changes that happen in the tween years! This workshop is designed for tweens ages 8-12, of all gender identities, to learn in the company of peers as well as with adult parent(s)/caregiver(s) to breakdown the taboos of puberty and reinforce the power of family and friend support systems.
  • March 4, 12-2pm EST
  • Virtual
  • Workshop Registration
Special Olympics Virginia: Healthy Relationships and Sexual Health for All Abilities Class Series
  • A 10-week virtual class series about healthy relationships and sexual health for people with intellectual and development disabilities, ages 16 - 22. Classes will be led by a Mad Hatter Wellness educator and a Special Olympics peer educator. Classes are open to anyone aged 16-22 living in Virginia with intellectual and/or developmental disabilities. Support persons are welcome to observe or join in as needed. Participants will be mailed an educational guide to accompany the live classes.
  • Mondays, March 6 -May 8, 2023
  • 7 - 8pm EST, Virtual 
  • Special Olympics Virginia Registration 
PEATC Sexual Health and Wellness Workshop for Youth
  • This workshop series is for Youth with Intellectual and/or Developmental Disabilities ages 14-22.
  • This is part of a series of sessions designed specifically for Virginia youth with disabilities. These trainings are designed to increase an individual's capacity for self-advocacy and decision-making. Throughout these 3 sessions we will cover important topics including consent and body rights when it comes to safe and healthy boundaries, pregnancy and human reproduction and birth control, and sexually transmitted infections (STIs).
  • March 6, 13, & 21 @ 6 - 7 pm 
  • Virtual
  • PEATC Registration
Saprea Teaching Your Kids About Healthy Sexuality
  • Teaching your kids about healthy sexuality is a key way you can reduce the risk of child sexual abuse in your family. And no one knows your family better than you. Through this discussion, we will help you consider your own beliefs and family values and how they can influence conversations about sexual development with your kids.
  • March 7, 11:30am - 12:30pm EST
  • Virtual
  • Workshop Registration
Thames Valley Children's Centre What is Going On?! An Intro to Puberty and Sexuality
  • Puberty is a time of change which can often leave parents (and teenagers!) confused and frustrated. This presentation will teach you how to use behavioural strategies to prepare for, and minimize, the challenges associated with puberty for teens with autism. We will also discuss how to talk about sexuality with your pre-teens and teens.
  • March 15, 1:00 - 2:30pm EDT
  • Virtual
  • Workshop Registration
Sex Positive Families: Growing Into You: Live Puberty Workshops
  • Join us for a fun, interactive virtual workshop that will help your family talk openly about puberty and learn about the changes that happen in the tween years! This workshop is designed for tweens ages 8-12, of all gender identities, to learn in the company of peers as well as with adult parent(s)/caregiver(s) to breakdown the taboos of puberty and reinforce the power of family and friend support systems.
  • March 26, 3-5pm EST
  • Virtual
  • Workshop Registration
Elevatus: Becoming a Sexuality Educator and Trainer
  • This 3-day *certificate training is for anyone who works with people with I/DD and wants to lead sexuality education classes, staff training, or parent workshops. When it comes to talking about sexuality, people with disabilities are often excluded, almost as if they are incapable of having sexual thoughts, feelings and needs. In reality, they too are sexual beings who need the information and skills for making healthy decisions about sexuality. Though agencies and schools who work with people with developmental disabilities know that sexuality issues need to be addressed, they don’t necessarily feel comfortable or competent enough to do so. This training will give you the curriculum, tools, and skills to teach sexuality education classes and lead staff/parent training.
  • April 5 - 7, 11:00am - 5:30pm MST
  • Elevatus Registration
SVAP 16th Annual Autism 5k
  • Join us by running or walking a 5K, wherever you are, or here with us in Harrisonburg! Your fundraising efforts will empower our work to provide scholarships and promote a more inclusive world for people with autism.
  • April 8 @ 1307 Parkwood Dr, Harrisonburg VA (Virtual race also available)
  • SVAP 5K Registration
LEAP for Teens Leadership for Empowerment and Abuse Prevention    
  • Leadership for Empowerment and Abuse Prevention (LEAP) for Teens is a training for teens with intellectual and developmental disabilities about healthy relationships. Training will occur online through Zoom in three 90-minute sessions. LEAP is very interactive and breaks will be provided. Each session builds upon information learned in the previous session, so it’s important that teens attend each session. 
  • Various dates available in February and March 
  • LEAP Registration
PEATC Let's Talk About It: Sexual Health and Wellness Training
  • Individuals with intellectual and developmental disabilities (IDD) are often not included in discussions around sexual health and wellness. In fact, many people don't view individuals with IDD as sexual beings. We are all sexual beings. It is critical for youth with disabilities to develop self-care skills, cultivate social skills, gain an understanding of appropriate behaviors, increase personal safety, and work toward becoming a more independent adult. This training will provide information for parents/guardians of students with IDD and the professionals that work with them to offer practical tools and strategies along the journey.
  • This workshop is for Virginia parents, guardians, and family members of youth with disabilities as well as educators and professionals.
  • There are 2 training sessions. Registrants should plan to attend both!
  • April 24 & 25 @ 6:00 - 8:00pm
  • PEATC Registration

 
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Disability-inclusive Sexual Health Network · 775 Martin Luther King Jr. Way · Harrisonburg, VA 22801 · USA

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